Treffer: Using a community engaged research approach to develop the social skills training program for adults with Williams syndrome.

Title:
Using a community engaged research approach to develop the social skills training program for adults with Williams syndrome.
Authors:
Fisher MH; Department of Counseling, Educational Psychology, and Special Education and Center for Services, Training, and Research for Independence and Desired Employment, Michigan State University, East Lansing, MI, USA., Black RS; Department of Special Education, University of Hawai'i at Mānoa, Honolulu, HI, USA., Kammes RR; Department of Counseling, Educational Psychology, and Special Education, Michigan State University, East Lansing, MI, USA.; UCLA Semel Institute for Neuroscience and Human Behavior, Los Angeles, CA, USA.
Source:
Journal of intellectual disabilities : JOID [J Intellect Disabil] 2025 Dec; Vol. 29 (4), pp. 894-912. Date of Electronic Publication: 2024 Apr 05.
Publication Type:
Journal Article
Language:
English
Journal Info:
Publisher: SAGE Publications Country of Publication: England NLM ID: 101229024 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1744-6309 (Electronic) Linking ISSN: 17446295 NLM ISO Abbreviation: J Intellect Disabil Subsets: MEDLINE
Imprint Name(s):
Original Publication: London : Thousand Oaks, CA : SAGE Publications, c2005-
MeSH Terms:
Williams Syndrome*/rehabilitation , Williams Syndrome*/psychology , Social Skills* , Community-Based Participatory Research* , Program Development*/methods, Humans ; Adult ; Male ; Pilot Projects ; Female
Contributed Indexing:
Keywords: Williams syndrome; community engaged research; community participation; social skills
Entry Date(s):
Date Created: 20240405 Date Completed: 20251210 Latest Revision: 20251210
Update Code:
20251210
DOI:
10.1177/17446295241245783
PMID:
38578112
Database:
MEDLINE

Weitere Informationen

This article describes the development of a distance-delivered social skills training program for adults with Williams syndrome (SSTP-WS) through a community engaged approach. Throughout six phases of development, the research team received input from adults with Williams syndrome, caregivers, service providers, educators, and researchers on (a) the need for a training program and topics to be addressed (Phase 1), (b) an initial draft of the SSTP-WS (Phase 3), (c) the intervention pilot study (Phase 5), and (d) feedback to provide context for the results of the study (Phase 6). The development of the SSTP-WS resulted in an intervention aligned with the Williams syndrome community's values and needs that supports the unique cognitive and behavioral phenotypes and social characteristics of this low incidence disability population.

Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.